Now don't go thinking I hate doctors or anything, considering I come from a family of doctors and am dating one. But, as much as they might want you to think so, they are not always right, and it is so important to know your own body.
Without giving any dirty details, I've been having GI symptoms for awhile and when they got worse a few months ago I met with a GI doc in Pittsburgh to start getting some answers. Before I went I'd done some research into my bizarre array of symptoms and found Fructose Malabsorption and knew it was what I had. Not like I went on WebMD and convinced myself I was dying of cancer, but more like reading people's stories and knowing I had gone through the exact same random things. The seemingly random foods I can't eat all tied together with this one diagnosis.
When I went to the appointment I went over everything and mentioned it to my new doctor. He kind of brushed it off because some of my symptoms weren't quite as bad as he thought they would be if I had FructMal. Then, he went on to prescribe me an antispasmodic that gave me the most intense pain I've ever felt, and sent me for multiple rounds of blood work that all came back negative. Then, he sent me to get tested for angioedema, which was kind of funny because that gives you symptoms that are way worse than what I was experiencing. When that came back negative, he wanted to proceed to scopes.
My symptoms aren't bad enough to test me for FructMal but they're suddenly bad enough for me to need an endo/colonoscopy? No, thank you. Plus, I had an endoscopy a few years ago and if nothing was structurally wrong then chances are nothing is now. I knew my body, and I knew it wasn't necessary.
So, I stood up for myself and told him I wouldn't do any scopes until he sent me to get the FructMal test. They only do it at one hospital in the area, and I was able to get in yesterday.
After lots of fasting and drinking a grossly sweet concoction, they started testing the hydrogen in my breath every 15 minutes for 3.5 hours. Basically, if you're absorbing the fructose like you should, the level of hydrogen won't change. If you're not, it will raise. If the level of hydrogen in your breath goes up 20 points, it's considered a positive test.
I went from 1-71.
It was so positive they let me stop the test early.
I am so thankful I didn't just sit back and waste the time, money, and discomfort on getting unnecessary scopes done. Moral of the story? Know your body, and speak up! Doctors are amazing, but you know your body the best, and it's so important to take an active role in your health!
Now...who can find me a food to eat with no gluten or fructose? ;)